Resources for Patients
Getting the health care you need and deserve feels a lot harder than it should be. We want to help! Below are resources to help you find a provider (from OB/GYNs to surgeons to pelvic floor physical therapists), dig into some bibliotherapy, and hear stories from patients like you.
FIND A PROVIDER WHO CARES ABOUT YOU
The International Pelvic Pain Society provides a free service to help you locate health care providers who specialize in pelvic pain.
GLMA: Health Professionals Advancing LGBTQ Equality provides a free directory of practitioners in your area (from primary care to specialists to dentistry) who are LGBTQ-welcoming.
Finding a provider who knows how to treat endometriosis can be difficult. Endometriosis.org provides resources and advice for finding a practitioner who is a good fit.
AAGL (Elevating Gynecologic Surgery) hosts a provider finder of over 7000 minimally invasive gynecologic surgeons around the world to help you locate surgeons in your area.
The National Vulvodynia Association maintains a database of practitioners who treat vulvar pain—and can help you find a list of these providers near you.
The North American Menopause Society (NAMS) created a directory of health professionals to help you find a menopause clinician who is right for you (from perimenopause and beyond).
The International Society for the Study of Women’s Sexual Health (ISSWSH) hosts a directory of providers who at least partially devote their practice to women’s sexual health—so you can find a provider who’s right for you.
The Interstitial Cystitis Network maintains a small database of highly-recommended practitioners who treat IC/BPS, bladder, and other pelvic pain conditions.
PELVIC FLOOR PHYSICAL THERAPY
This Herman & Wallace-founded directory can help you find a pelvic rehabilitation practitioner that best fits your needs
Find pelvic floor and pelvic pain practitioners either by location or by condition with this handy directory.
Search a database of APTA (Section on Women’s Health) providers to find a practitioner who best fits your needs (search by either location or condition).
The Ohnut team has partnered up with our favorite renowned clinicians to bring you the virtual tools and support to improve your sexual wellbeing, manage pain, and become a bathroom master (without the hefty price tag).
MEET THE PATIENTS ON A MISSION
Gynecologic and pelvic pain conditions have historically been (and are still) poorly understood and often poorly treated—but the tides are changing and the world is watching.
Film by Shannon Cohn
Endometriosis affects 1 in 10 women* and yet it takes an average of 8-10 years to receive a diagnosis. Endo What? is a film dedicated to providing the most current and accurate information about endo—straight from the experts. From director, producer, and endometriosis-haver Shannon Cohn.
Film by Shelby Hadden
Tightly Wound follows the all-too-common story of a woman with vaginismus, and “how health professionals have failed her, men have rejected her, and shame, anger, and hatred have plagued her body.” Based on filmmaker Shelby’s Hadden’s 2016 BUST Magazine essay.
Podcast by Allison Behringer
Brought to you by host and producer Allison Behringer, this episode of the podcast Bodies explores Behringer’s personal quest to find out what was causing sex to be painful for her—and how to advocate for herself.
Story by Sindha Agha
Radiolab’s Gonads features Sindha Agha’s struggle with endometriosis—and how with her father’s support and through visualizing and transforming the color of the pain in her mind—she was able to sit with her pain.
FROM PROVIDERS WHO CARE
Amy Stein, DPT
Heal Pelvic Pain offers a written program to help relieve pain, incontinence, improve bladder and bowel function, cure IBS, reduce sexual discomfort, and improve the quality of your life. Healing Pelvic & Abdominal Pain Video explains the various symptoms and the possible causes, of pelvic and abdominal pain, and assist men, women and children of whom suffer from pelvic, abdominal and back pain, through gentle massages and stretches.
Amy Stein, DPT & Iris Orbuch, MD
Beating Endo offers readers an anti-inflammatory lifestyle protocol that incorporates physical therapy, nutrition, mindfulness, and environment to systematically addresses each of the disease’s co-conditions on an ongoing basis up to and following excision surgery.
Andrew Goldstein, MD, Caroline Pukall, PhD & Irwin Goldstein, MD
Painful sex is a condition that causes embarrassment and silence -- often going undiscussed or misdiagnosed; as many as 40 percent of women who suffer from it won't seek medical care. And most medical professionals are still in the dark when it comes to women's sexual pain. Now, three leading experts tackle the stereotypes, myths, and realities of sexual pain in this easy-to-understand, accessible guide that will help you get the help you need and deserve.
HELPFUL TOOLS
The revolutionary wearable
Ohnut is a set of wearable rings that allows couples to customize penetration depth so you can incrementally adjust and explore what feels good—for both of you.
Designs for healing
Duvet Days is about supporting those affected by rape and domestic abuse. Using design to create awareness, self discovery, and a space for self-love.
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